Developing and implementing a health educational package for preemie moms in the care of their baby after hospital discharge
Roshaya Zakaria1, Rosnah Sutan2, Rohana Jaafar3
1 Department of Community Health; Department of Nursing, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
2 Department of Community Health, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
3 Department of Pediatric, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
|Date of Submission||29-Aug-2019|
|Date of Acceptance||26-Jan-2020|
|Date of Web Publication||28-May-2020|
Dr. Rosnah Sutan
Department of Community Health, Faculty of Medicine, Universiti Kebangsaan Malaysia, Jalan Yaakob Latif, Bandar Tun Razak, Cheras, 56000 Kuala Lumpur
Source of Support: None, Conflict of Interest: None
INTRODUCTION: Educating a mother of a premature baby and providing a structured written educational information can enhance better understanding and practice. This article describes the development and implementation of a health educational package for preemie moms in the care of their premature baby after neonatal intensive care unit discharge.
SUBJECTS AND METHODS: The package known as “Preemie Mom: A Guide for You” was designed based on Stufflebeam's model and has four phases: (1) content evaluation from available sources of information, (2) input evaluation based on mothers' need related to premature baby care, (3) process evaluation for package designing and content drafting, and (4) product evaluation to determine its feasibility. The contents were extracted and collated for validation by consulting various specialists in related fields. A final draft was drawn based on comments given by experts. Comments from the mothers were taken for formatting, visual appearance, and content flow for easy understanding and usage.
RESULTS: All ten existing articles and eight relevant documents were gathered and critically appraised. The package was designed based on 11 main components related to the care of premature baby after discharge. The content validation was accepted at a minimum score of 0.85 for the item-level content validity index analysis. Both experts and mothers were agreed that the package is easy to use and well accepted as a guide after discharge. The agreement rate by the mothers was at 93.33% and greater for the front page, writing style, structure, presentation, and motives of the package.
CONCLUSIONS: ”Preemie Mom: A Guide for You” is a validated health educational package and ready to be used to meet the needs of the mother for premature baby care at home.
Keywords: Development and validation, educational materials, parent education, premature baby care
|How to cite this article:|
Zakaria R, Sutan R, Jaafar R. Developing and implementing a health educational package for preemie moms in the care of their baby after hospital discharge. J Edu Health Promot 2020;9:113
|How to cite this URL:|
Zakaria R, Sutan R, Jaafar R. Developing and implementing a health educational package for preemie moms in the care of their baby after hospital discharge. J Edu Health Promot [serial online] 2020 [cited 2021 Jun 13];9:113. Available from: https://www.jehp.net/text.asp?2020/9/1/113/285155
| Introduction|| |
Having a premature baby is claimed to be a challenging task for parents and family members of the child. Diagnosis of premature baby carries a wide range of reactions and feelings, especially for the mother, and it is closely connected to the entire family's life. The situation creates emotional connection behavior between infant and caregiver. Among the commonly described for the emotional behaviors are fear and confusion as the mothers would like to know their premature babies' health. However, they might not know what questions to ask or might be too overwhelmed by the situation to request information from the neonatologist or nurses. The worries on premature survival are always in the list of frequently asked questions. A study has shown that the mortality, morbidity, emergency department visits, and rehospitalization were reported higher among late preterm infants following discharge.
Parents with premature babies always require additional emotional support, clear and honest communication, and adequate resources to cope with their stress in facing the situation. Management of the baby in the transition from hospital to home should be managed by their parents for discharge process initiatives rather than focusing on the management initiated by the nurses as practiced in many neonatal units. Parental confidence in the care of the premature baby is vital in minimizing the hospital stay, reducing rate of readmission, reducing rate of unplanned visits to the emergency department, increases in presence at scheduled follow-up appointments after discharge and diminished use of unscheduled community health resources. It has been documented that premature babies require specific health system needs and the high human capital outcomes in 2010. About 135 million premature babies need specific care from the health system, and it has been estimated that the loss of human capital was about 15 million around the year 2010. Therefore, it is important to have proper information provided for every discharge of a newborn baby, especially the premature baby, to facilitate the increase in the utilization of continuity of care by the primary health care and reduce hospitalization. It includes the need of having extra care in reducing deaths for a transition of thermal adaptation, early feeding establishment by supporting for immediate and exclusive breastfeeding, neonatal resuscitation, kangaroo mother care, nutritional compensation, the importance of hygienic cord, and skincare.,, Lacking informations related to a perceived state of health, queries about care, especially in avoidance of postdischarge jaundice or apnea, inadequate pain management, and the time between hospital discharge and readmission, were commonly highlighted problems.
The Ministry of Health Malaysia (MOH) has stressed out on five critical components on the care after discharge for a premature baby in Malaysia, including providing parent education focusing on specific care plans and written checklist. Researcher suggests that all the components need to be reviewed as there was a lack of evidence in reporting the effectiveness of the program. Through an informal discussion with the nurse manager in neonatal intensive care unit (NICU) in hospital, till date, there is no guideline available on a care plan for the parents with premature baby after hospital discharge for home monitoring. The neonatal care guideline published by the MOH is focusing on care plans for the newborn as general, but only targeting for the care provider. The guideline stated specific care plans for premature baby in Malaysia including thermal care protection, emphasizing feeding to ensure appropriate weight gain, avoid overcrowded places to reduce risk of respiratory tract infection, and immunization schedule monitoring according to chronological age. It also reinforced on appropriate premature baby sleep position which is supine to reduce risk of sudden infant death syndrome (SIDS). Apart from that, the need to educate on hand hygiene and reinforcement on follow-up for myopia, hearing, and neurodevelopment was accounted. Unfortunately, a specific module or package on parent education for specific care plans, especially for a preterm baby, is not available specifically to guide the health-care workers dealing with mothers of premature babies in NICU and after discharge. At present, the education was delivered informally to the mother for them to have some informations on preterm baby care at home. The effectiveness of the content delivered also cannot be discussed as there is no reported study on this issue.
To date, a specific, accurate, and easy-to-follow health information regarding premature baby care is limited in Malaysia. The existing information accessible from media websites is limited by socioculture variation available for local. Therefore, it is time to prepare an educational package and educate parents especially the mother before NICU discharge with appropriate written information that can be useful and accessible at home for continuity of care. The contribution of this study is obvious as the outcomes on the provision of structured knowledge tailored to local people in a package can be capitalized as guidelines to the mothers. This is important because many parents feel uneasy and unprepared to care for their baby after discharge from NICU. Besides that, good and quality care for premature babies at home can be predicted when accurate information and support with appropriate educational materials were delivered.
Parents should be taught before hospital discharge on techniques and usage of education materials to ensure adequate infant care and provided a guideline on accessing health-care providers for consultation. The discharge teaching technique was included in a wide range topics such as feeding (breast, bottle, or an alternative technique, including formula preparation if required), cleanliness and bathing, cord care and skincare, diapering, temperature measurement, signs of illness, comforting, handling of emergency situations, infant safety including proper sleeping position and use of car seats, and the development of a premature infant., These are parallel to the recommendations from the American Academy of Pediatrics regarding preparation for home care. Many researchers revealed that education for parents can help increase mothers' self-efficacy and competency.,,, It can also be valued as a guideline for nursing licensing of neonatal practice. A study done recently on challenges of care at NICU in Iran has highlighted the importance of interaction between the care provider and mother as one of the competency skills that need to be enhanced. Furthermore, the study mentioned the appropriateness of NICU facilities that need to complied. In Malaysia, the nurse's competency is regularly monitored by its respective organizations in accordance with the guidelines provided by the Nursing Board of Malaysia. Issues related to traditional beliefs among the mothers need to be managed to avoid conflict and misunderstanding. The facilities available in the referral specialist hospital in Malaysia are standardized according to the protocol. However, health information guidance is not available to be used by the mothers as a reference. Therefore, the present study aims to develop and validate a”Preemie Mom: A Guide for You” package for the care of premature baby after NICU discharge as a guide for mothers and carers.
| Subjects and Methods|| |
The method of educational material development by Stufflebeam's evaluation model published in 2004 was used as a model to develop the “Preemie Mom: A Guide for You” package. The method is known as context, input, process, and product evaluation (CIPP). The use of this structured model is particularly useful in creating strong, assured, and exchangeable outcomes to the mothers of a premature baby.
The Stufflebeam's evaluation model has a comprehensive framework that involves formative and summative assessment of programs, projects, individuals, products, institutions, and systems that focus on improvement and accountability. The development of process was began at the context evaluation. A structured review was conducted to obtain thorough knowledge on the needs of the mothers in the care of premature baby. A comprehensive search was done through selected databases using keywords and subject headings such as “premature,” “Neonatal Intensive Care Unit,” “nursing,” “postnatal,” “premature baby care,” “parenting,” “after discharge,” “parent's participation,” and “infant care.” The relevant articles were selected based on the predefined criteria, which provide any information regarding the care activities for the premature baby after NICU discharge. The articles that discuss about the care of premature baby in the NICU but not concerning to the discharge planning were excluded throughout the process. Besides that, document analyses were carried out on related documents and health educational materials such as reports, guidelines, and books to identify the mother's need and practices in relation to the care of premature baby. All the selected relevant articles and the existing documents have been critically appraised to decide for an appropriate and good quality content. Moreover, needs analysis also involves information sharing with the mothers of premature baby and the neonatal nurse in view of their perspectives relevant to the topic. Informal interview was conducted based on individual needs to accommodate the information from literature review. The second phase was continued by input evaluation process. All the informations from the literature, document analysis, and mother's views were gathered to form a preliminary outline for the main components and to detail the contents of the package. The content selection was determined by considering existing limitations according to the needs of the mother. The draft of the package design and structure was planned accordingly.
Process of the development was subsequently directed to the third phase known as process evaluation. It was refined to act on decision-making for content drafting and package designing. Discussion and consultation with the neonatologist have been implemented to determine the suitability and accuracy of the content information and the structure of the package. Suggestions from the neonatologist were taken into consideration throughout the process. Finally, the process ended at the product evaluation phase to identify short-term, long-term, desirable, or intended outcomes besides unsolicited outcomes. The process is coherent with the purpose of this evaluation model that emphasizes the outcomes as inputs for improvements and not just to prove the effectiveness of the program. A feasibility study was conducted on 19 (54.29%) among mothers of premature baby in the NICU to determine the final version of the package whether or not to be accepted and reliable to be used for the care of premature baby at home.,, The mothers were selected based on purposive sampling. The design of this sampling is goal oriented to meet the objectives of the study. The main objectives of this feasibility study were to evaluate feedback of the mothers and their ability for engagement in the study and to evaluate the results, measurement procedures, acceptance of research procedures, and interventions conducted in the study. Each activity of the mothers was monitored and recorded to facilitate the evaluation. Besides that, the mothers were allowed to share their opinions and suggestions for consideration to improve the content of the package.
Moreover, the feedback from panel of experts relating to their review was subject to the comments and suggestions that were accepted for consideration to amend. Every page was counted for the changes. Amendment to the “Preemie Mom Package” was made after all considerations on the assessment and evaluation. The final draft was performed for another correction, editing, and formatting. Following correction, the title of the package and the use of appropriate words and images were revised. In addition, every importance of information that needs to be emphasized was clearly stated and highlighted in bold sentences. After the amendment was completed, the updated final draft has been rephrased and assessed for the validity before it being used by the mother of a premature baby.
The final version of the package was designed as a booklet presentation with the illustration of appropriate images on particular components. It can promote a better understanding and easy to use. The overall structure and presentation are well organized containing 58 doubled-sided pages, including front and back cover, table of contents, and a page for notes. This structure design is following an educational booklet developed from the previous study.
The study was approved by the Research Ethics Committee of University (Code project: FF-2016-278), and written informed consent was obtained from each respondent involved in this study.
Assessment of content validity
Focus of the development is to provide information and as a guide for the care of premature baby at home. It included the components of daily activities such as feeding, infection prevention, care of the hygiene, safe sleep, safety at home and follow-up visit, and immunization. The content of the package was prepared in the form of a booklet for a convenient used to the mothers. Content validity assessment was conducted to measure the adequacy of the content for the developed package. A total of nine panels of experts were appointed and agreed to critically examine the content of the package. Selection was done among different fields of the health-care professional comprising academicians and practitioners in public health, neonatologist, primary health, neonatal nurse, and nutritionist. The panel necessitates to evaluate the content relevance and structure as a whole. Evaluation form was completed for the assessment of content validity index (CVI) by five experts. Comments and feedback on the developed package were taken into consideration.
The CVI for item-level (I-CVI) and scale-level/average (S-CVI/AVE) was calculated by the number of experts corresponding to the evaluation of agreement and relevance of each component. Likert's scale of 1–4 was used (1 = not relevant, 2 = item needs some revision, 3 = relevant but needs minor revision, and 4 = very relevant). The content validity of the package component was then determined as a proportion of items, which an index of I-CVI above 0.80 was reflected as adequate., As for the scale-level/average (S-CVI/AVE), the value of > 0.90 was considered excellent., Subsequently, the Likert's scale of four (1 = strongly disagree, 2 = disagree, 3 = agree, and 4 = strongly agree) was used by the panel experts to describe an agreement of the item., The achievement level above 70% is considered high for a level of the agreement among experts., The agreement score was calculated as below:,
| Results|| |
The outcome of the context evaluation
The outcome indicates the search results for the structure review. A comprehensive search was resulted of 105 articles from existing literature. Ten relevant articles were identified after seeing several inclusion criteria including publication years (2000–2016), full-text articles, English language, and data of subjects concerning premature baby care. Subsequently, eight existing relevant documents were analyzed. All the informations obtained were gathered and critically appraised.
The interview session revealed needs of information on baby's health comprising the knowledge on the care activities for premature baby. In view of nurses' perspectives, breast feeding is the most important task to be emphasized for the mothers in meeting the baby's feeding requirement. Besides that, risk for infection, hygiene and comfort of the baby, aware of danger signs, and follow-up visit were also essential.
The outcome of the input evaluation
Critical appraisal was conducted using Scottish Intercollegiate Guidelines Network to evaluate a systematic review articles, Critical Appraisal Skills Programme for qualitative studies, and the STROBE checklist to reports of cross-sectional studies., Nineteen components of care activities have been discussed from the literature review. However, the development of this package emphasizes on the needs of mothers in the care of premature baby after NICU discharge whereby the delivery of information relates to the specific care activities for the premature baby at home.
Therefore, the result of the evaluation has been finalized into 11 components related to the care of premature baby at home. The components include information about premature, identify vital signs and close observation about baby's conditions, feeding for premature baby, prevention of infection, care of hygiene, safe sleep, managing and coping with the baby's problems, massage for premature baby, special considerations for premature baby, baby safety at home and follow-up visit, and immunization.
The outcome of the process evaluation
This section is reporting on the outcome from the third stage of the development process, which involves the package designing and content drafting. Some of the suggestions from the discussion and consultation with the neonatologist were considered. The amendment was done on the title of the package's front cover to state the word of “a guide for the care of a premature baby at home.”. Besides that, words paraphrasing was done based on the suggestions for certain sentences used in the package. The amendments also includes information on the importance of chronological and corrected age for the premature baby, stating the risks of health problems that may be encountered in the NICU and possible health problems that may occur at home. In addition, the use of appropriate images and the need to provide a checklist of specific care activities such as managing an emergency situations at home, and additional information on respiratory syncytical virus (RSV), pneumococcal and rotavirus (RV) vaccines was considered for a revision in relation to the immunization program for the premature baby.
Furthermore, one of the panel expert was commented for not using the word of “baby miracle” to represent the premature baby as at her knowledge, it has two different meanings that may lead to the misinterpretation among Malaysians. The researcher takes into account the comments and not included in the package. One of the experts also expressed her confusion regarding the image used to depict the baby being allowed to go home. The expert also suggested that the title for identifying danger signs should be clearer. However, other panel of experts agree that the image and the title should be used in the package. A related statement was written in the package to illustrate the management of baby with colic and the explanation on the why baby cannot be shaken is related to the shaken baby syndrome. Besides that, another expert gives comments and suggestions on the use of appropriate images to avoid confusion. Recommendation to use images among babies of Malaysian populations was taken into consideration.
The suggestion also includes a component of handling bottle-feeding where it is good to describe for a specific time limit to boil the feeding bottle for the purpose of decomposition. In addition, the expert also provides feedback on component layouts and the importance of the cognitive link between components. Language usage should also be improved to determine the quality of the developed package. The suggestion also describes the needs to include information of participation among father in the introduction section. Identifying vital signs and close observations about baby's conditions are greatly emphasized. Among them is the information about reading body temperature. The suggestion was to clearly state the reading of <36.5°C or >37.5°C that needs to be monitored by the mother. Moreover, the information about warning signs for breastfeeding mothers and how to store an expressed breast milk needs to be rephrased for a clearer and relevant to the level of mothers' understanding. Finally, the other comments such as spelling mistakes, image layouts and their description, the font size used, and the sentence that need to be emphasized were taken into consideration.
In summary, the first draft of the package is the result of the needs analysis. The second draft was created after consulting with public health experts to evaluate the suitability and accuracy of the package content for the use of the premature mothers at home. The third draft came after a discussion with neonatologists on the accuracy of content information. Finally, package validation and reliability were performed to verify the contents of the package. Results on the content validation are presented in [Table 1] and depicted an acceptable value for the “preemie mom package”. I-CVI was presented for all the components ranged from 0.93 to 1.00. Besides that, scale CVI, average calculation method (S-CVI/AVE), was presented at 0.97 from the calculation of each expert evaluation. This value indicates that the contents of the package are adequate and the result shows a very high level of achievement.
[Table 2] shows an overall evaluation according to the panel of experts. The experts were rated for agreed and strongly agreed to all item in accordance with its categories regarding the front page, writing style, structure, and presentation of the package. The CVI was calculated for each item which ranged from 0.90 to 1.
|Table 2: Agreement for overall evaluation of the package according to experts|
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The outcome of the product evaluation
Mother's characteristics comprising in feasibility study were varied in age, gender, educational status, occupation, mother's status ( first time or experienced mother), singleton or multiple pregnancy, and neonatal status (gestational age and birth weight). The mothers were successfully demonstrated the skills of care activities including feeding, changing diapers, skin care, swaddle techniques, and massage. They reported for very good achievement in the care of their premature baby at home. Mothers are very confident in carrying out their care activities and applying the techniques correctly and accurately according to the package provided.
Positive feedback was also given on the overall evaluation. [Table 3] shows that the majority of the mothers have agreed with all items category. The agreement rate was ranged from 93% to 100% for the front page, writing style, and structure and presentation of the package. The evaluation of the motives delivered was rated for 100%. The motives is concerning of their understanding of what they read about the package, their feeling of motivation to read the package to the end, and the highlighted relevant aspects on how to care for premature baby at home.
|Table 3: Agreement of the mothers for an overall evaluation of the package (n=15)|
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| Discussion|| |
This “preemie mom” package is a comprehensive educational package in accordance to the care of premature baby that was developed through a structured literature review process. The purpose of the package development is to guide the mothers in the care of their premature baby after NICU discharge. The use of specific components of care activities for the premature baby helps form a structured and easy-to-understand educational materials for the mothers. The care activities that were included in the developed package are in parallel with the report published by the World Health Organization,, which also discussed the importance of care after discharge to reduce neonatal morbidity and mortality.,
As the package was designed based on Stufflebeam's evaluation model for the CIPP, the quality can be discussed throughout the evaluation process. CIPP model mostly used to evaluate the development of product and in the program such as education curriculum. Previously, this model has been used in medical and health related to the nursing curriculum. Recently, it was used in the study related to an evaluation of maternal involvement in the process of growth and development among children. Therefore, this is the first educational package that was developed based on the CIPP model to evaluate activities for premature baby care among parents. The adoption of this model has been supported as an evaluation model on the development of protocols for parental training programs. From the above discussion, this proves that the use of this model is appropriate and consistent with previous study that outlines the purpose of the CIPP model to look at the outcome of each evaluation being conducted as a process of improvement to produce a good product or program.
The package provides comprehensive information and illustrates all the related skills that need to be emphasized. A booklet with written and illustrated information can help individuals with low health literacy to understand the provided information in an easier way, enhance understanding, recall what is presented and show compliance with health education information.,, The package with written and illustrated information has also improved the confidence of mothers specifically related to breastfeeding activity., Besides that, the results of the study have contributed to a more practical knowledge-based package with statistically high in content validation and have been accepted by the population studied. The eleven components related to the care of premature baby at home have proven adequate and show a very high level of achievement with the panel expert evaluation for I-CVI and S-CVI/AVE value is higher than 0.80 and coincides with the previous studies., Moreover, the agreement on an overall evaluation of the package among the experts and the mothers for the front page, writing style, structure, and presentation wasresulted a high level of the agreement (achievement level above 70%) and indicate the readability and feasibility., The readability and feasibility are also supported by the evaluation of motives delivered for the package that are rated positively by the mothers. Thus, the present study shows similar findings as previous studies whereby the content validity was performed based on CVI for the development of educational package.,,,,
A well-developed educational booklet in the present study are easy to understand to facilitate understanding among the mothers on the information provided about the care activities of the premature baby at home. Hence, it is important to provide information regarding the premature care specific to the mother's understanding about chronological age and corrected age for the purpose of growth and development assessment,, the definition of premature baby, and risk of health problems that may occur to premature baby.,,,,,,,,,,,,,,,,,,,,,,,,,,,,,, Previous studies shared similar findings of the need for this informations that are important in reducing mother's fear and anxiety of unwanted event when giving care to their premature baby.,,, Furthermore, the recent study also discusses the importance of identifying vital signs and providing a close observation for the baby at home. These are parallel with previous studies which emphasize the importance to understand the information on resuscitation and preparation for emergency situation.,,,
The importance of feeding component for premature baby was discoursed in the present study and its practice was reported increased as it has been discussed previously in other studies. The elements of the feeding component were exclusive breast feeding, identifying feeding clue, meeting the needs of breastfeeding.,,,, Prevention of infection also discussed to prepare mothers with the need to minimize the risk of infection after discharge to home., Component of care of hygiene includes personal hygiene, clothing, personal item used, and daily practices. For example, bathing the baby requires knowledge and practical skill with the aim for mother's understanding of controlling baby's body temperature due to the condition of prematurity. Sleep position is one of the factors contributing to the SIDS. Hence, the needs of safe sleep information were included in the developed package to prevent SIDS to occur as recommended by previous studies.,
In addition, mothers of the baby who experiencing colic and excessive crying have significantly lower in self-efficacy., These two elements were closely related to the management of the baby's problems which are included as the component for the recent package. Besides that, to provide comfort and safety for the baby, the components such as baby massage, special considerations that need to be monitored, and safety at home have been included in the present study. Finally, follow-up visit and immunization schedule were remained important to fulfill the baby's needs.
In relation to the importance of having a structured educational package, the development of educational materials needs to be more structured as it enhances better acceptance of the relevant information. It helps educate parents of a premature baby for an early intervention program and the importance of continuity of care after hospital discharge. It was also to promote an active family involvement in the care of their premature baby and its growth and the development. In addition, any information that was delivered to the parents should be understood and adapted to their reading ability. Therefore, developing an educational package for parental use requires full involvement throughout the development and evaluation process and using effective strategies with a good presentation that are sensitive to their needs.
Up to present knowledge, this “preemie mom package” was first developed in Malaysia as a guide for mothers to care for their premature baby after NICU discharge. This package is relevant for the use of mother and the carer as it has validated by the experts for its components of the care activities and being accepted by the mothers. It can be referenced primarily in terms of content and skills. The mothers are able to use a new strategy that has been established for the care of a premature baby. It was easy to understand and can be self-directed use among a low-risk category of the mother. This package should be disseminated to the whole target populations as it is implied to ensure the availability of the package in hard copy and various medium of other resources such as web-based access, mobile application, and social network.
Limitation of the study
The content of the package for this study was gathered from the structured review and through all phases of the development process. Therefore, developmental care was not explained in this study although it is one of the key components in the care of premature babies. The framework of developmental care guides NICU staff in delivering neuroprotective care practices in the NICU. As previously mentioned, the content of the package should focus on the care activities given by the mothers of the premature baby after NICU discharge.
This article is the result of a research project that was conducted at NICU, University Kebangsaan Malaysia Medical Centre. Special thanks to the head of unit and all the staffs for the cooperation throughout the research work and also to the Research Ethics Committee of the University for the approval to conduct this study and the financial support provided.
Financial support and sponsorship
The study was financially supported by the Research Ethics Committee, Universiti Kebangsaan Malaysia, with the code FF-2016-278.
Conflicts of interest
There are no conflicts of interest.
| References|| |
Mok E, Leung SF. Nurses as providers of support for mothers of premature infants. J Clin Nurs 2006;15:726-34.
Premji SS, Young M, Rogers C, Reilly S. Transitions in the early-life of late preterm infants: Vulnerabilities and implications for postpartum care. J Perinat Neonatal Nurs 2012;26:57-68.
Ingram J, Blair PS, Powell JE, Manns S, Burden H, Pontin D, et al
. Preparing for home: A before-and-after study to investigate the effects of a neonatal discharge package aimed at increasing parental knowledge, understanding and confidence in caring for their preterm infant before and after discharge from hospital. Health Serv Deliv Res 2016;4:1-114.
Lawn JE, Davidge R, Paul VK, von Xylander S, de Graft Johnson J, Costello A, et al
. Born too soon: Care for the preterm baby. Reprod Health 2013;10 Suppl 1:S5.
World Health Organization. Health Education: Theoretical Concepts, Effective Strategies and Core Competencies: A foundation document to guide capacity development of health educators. Regional Office for the Eastern Mediterranean: World Health Organization; 2012. Available from: http://www.who.int/iris/handle/10665/119953.
[Last accessed on 2018 August 4].
Whyte RK. Neonatal management and safe discharge of late and moderate preterm infants. Semin Fetal Neonatal Med 2012;17:153-8.
Soler RS, Juvinyà Canal D, Noguer CB, Poch CG, Brugada Motge N, Del Mar Garcia Gil M. Continuity of care and monitoring pain after discharge: Patient perspective. J Adv Nurs 2010;66:40-8.
Ministry of Health Malaysia. Family Health Development Division. Perinatal Care Manual: Section 5, Neonatal Care. 3rd
ed. Malaysia: Ministry of Health Malaysia; 2019.
O'Brien K, Bracht M, Macdonell K, McBride T, Robson K, O'Leary L, et al
. A pilot cohort analytic study of family integrated care in a Canadian neonatal intensive care unit. BMC Pregnancy Childbirth 2013;13 Suppl 1:S12.
Berns SD, Boyle MD, Popper B, Gooding JS, Preemie Health Coalition. Results of the premature birth national need-gap study. J Perinatol 2007;27 Suppl 2:S38-44.
American Academy of Pediatrics Committee on Fetus and Newborn. Hospital discharge of the high-risk neonate: Policy statement. Pediatrics 2008;122:1119-26.
Obeidat HM, Bond EA, Callister LC. The parental experience of having an infant in the newborn intensive care unit. J Perinat Educ 2009;18:23-9.
Kartini M, Hapsari ED, Nisman W. The impact of health education on parenting self-efficacy among early-married women. GSTF J Nurs Health Care 2017;4:73-8.
Forsythe PL, Maher R, Kirchick C, Bieda A. SAFE discharge for infants with high-risk home environments. Adv Neonatal Care 2007;7:69-75.
Namnabati M, Farzi S, Ajoodaniyan N. Care challenges of the neonatal intensive care unit. Iran J Nurs Res 2016;11:35-42.
Ministry of Health Malaysia. Credentialing and Privileging GUIDELINES for nurses, Assistant Medical Officers and Allied Health Professionals. Malaysia: Ministry of Health Malaysia; 2018.
Ministry of Health Malaysia. Malaysian National Neonatal Registry and Clinical Research Centre. Malaysia: Ministry of Health Malaysia; 2017.
Stufflebeam DL. The 21st
Century CIPP model: Origins, development and use. In: Alkin MC, editor. Evaluation roots: Tracing theorists' views and influences. Thousand Oaks, CA: Sage Publications; 2004. p. 245-66.
Zhang G, Zeller N, Griffith R, Metcalf D, Williams J, Shea C, et al
. Using the context, input, process, and product evaluation model (CIPP) as a comprehensive framework to guide the planning, implementation, and assessment of service-learning programs. J High Educ Outreach Engagem 2011;15:57-84.
Whitehead D. Health promotion and health education: Advancing the concepts. J Adv Nurs 2004;47:311-20.
O'Cathain A, Hoddinott P, Lewin S, Thomas KJ, Young B, Adamson J, et al
. Maximising the impact of qualitative research in feasibility studies for randomised controlled trials: Guidance for researchers. Pilot Feasibility Stud 2015;1:32.
Hertzog MA. Considerations in determining sample size for pilot studies. Res Nurs Health 2008;31:180-91.
Creswell JW. Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. 4th
ed. Los Angeles: SAGE Publications; 2013.
Orsmond GI, Cohn ES. The distinctive features of a feasibility Study: Objectives and guiding questions. OTJR (Thorofare N
Oliveira SC, de Lopes MV, Fernandes AF. Development and validation of an educational booklet for healthy eating during pregnancy. Rev Lat Am Enferm 2014;22:611-20.
Polit DF, Beck CT. The content validity index: Are you sure you know what's being reported? Critique and recommendations. Res Nurs Health 2006;29:489-97.
Zamanzadeh V, Ghahramanian A, Rassouli M, Abbaszadeh A, Alavi-Majd H, Nikanfar AR. Design and implementation content validity study: Development of an instrument for measuring patient-centered communication. J Caring Sci 2015;4:165-78.
Madihie A, Mohd Noah S. An application of the sidek module development in rebt counseling intervention module design for orphans. Procedia Soc Behav 2013;84:1481-91.
Ghani FA, Aris M. Development, validity and reliability of skilled module to control stress among the teachers. J Teknologi 2012;58:45-50.
Amalia M, Sidek MN. An application of the sidek module development in rebt counseling intervention module design for orphans. Procedia Soc Behav Sci 2013;84:481-1491.
Ciliska D, Thomas H, Buffett MK. An introduction to evidence-informed public health and a compendium of critical appraisal tools for public health practice (Revised). National Collaborating Centre for Methods and Tools; 2012. Available from: www.nccmt.ca. [Last accessed on 2016 Jun 24].
Elm E, Altman DG, Egger M, Pocock SJ, Gøtzsche PC, Vandenbroucke JP. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: Guidelines for reporting observational studies. Policy and practice. Bull World Health Organisation 2007;85:867-72.
World Health Organization. Born too soon: The global action report on preterm birth. In: Howson CP, editor. March of Dimes, PMNCH, Save the Children. Geneva: World Health Organization; 2012.
Chavasse J. Curriculum evaluation in nursing education: A review of the literature. J Adv Nurs 1994;19:1024-31.
Shams B, Golshiri P, Najimi A. The evaluation of mothers' participation project in children's growth and development process: Using the CIPP evaluation model. J Educ Health Promot 2013;2:21.
Matthews JM, Hudson AM. Guidelines for evaluating parent training programs. Fam Relat 2001;50:77-86.
Menghini KG. Designing and evaluating parent educational materials. Adv Neonatal Care 2005;5:273-83.
Houts PS, Doak CC, Doak LG, Loscalzo MJ. The role of pictures in improving health communication: A review of research on attention, comprehension, recall, and adherence. Patient Educ Couns 2006;61:173-90.
Brett J, Staniszewska S, Newburn M, Jones N, Taylor L. A systematic mapping review of effective interventions for communicating with, supporting and providing information to parents of preterm infants. BMJ Open 2011;1:e000023.
Pennell C, Whittingham K, Boyd R, Sanders M, Colditz P. Prematurity and parental self-efficacy: The preterm parenting and self-efficacy checklist. Infant Behav Dev 2012;35:678-88.
Teles LM, Oliveira AS, Campos FC, Lima TM, Costa CC, Gomes LF, et al
. Development and validating an educational booklet for childbirth companions. Rev Esc Enferm USP 2014;48:977-84.
Arora C, Sinha B, Malhotra A, Ranjan P. Development and validation of health education tools and evaluation questionnaires for improving patient care in lifestyle related diseases. J Clin Diagn Res 2017;11:JE06-9.
Asrofah JA, Rosana D, Supahar. Development of CIPP Model of evaluation instrument on the implementation of project assessment in science learning. Int J Environ Sci Educ 2017;12:1999-2010.
Blencowe H, Cousens S, Chou D, Oestergaard M, Say L, Moller AB, et al
. Born too soon: The global epidemiology of 15 million preterm births. Reprod Health 2013;10 Suppl 1:S2.
D'Agostino JA, Gerdes M, Hoffman C, Manning ML, Phalen A, Bernbaum J. Provider use of corrected age during health supervision visits for premature infants. J Pediatr Health Care 2013;27:172-9.
Boykova M. Life after discharge: What parents of preterm infants say about their transition to home. Newborn and Infant Nurs Rev 2016;16 (2):58-65.
Burnham N, Feeley N, Sherrard K. Parents' perceptions regarding readiness for their infant's discharge from the NICU. Neonatal Netw 2013;32:324-34.
Cho JY, Lee J, Youn YA, Kim SJ, Kim SY, Sung IK. Parental concerns about their premature infants' health after discharge from the neonatal intensive care unit: A questionnaire survey for anticipated guidance in a neonatal follow-up clinic. Korean J Pediatr 2012;55:272-9.
Phillips-Pula L, Pickler R, McGrath JM, Brown LF, Dusing SC. Caring for a preterm infant at home. J Perinat Neonatal Nurs 2013;27:335-44.
Smith VC, Hwang SS, Dukhovny D, Young S, Pursley DM. Neonatal intensive care unit discharge preparation, family readiness and infant outcomes: Connecting the dots. J Perinatol 2013;33:415-21.
Ansari S, Abedi P, Hasanpoor S, Bani S. The effect of interventional program on breastfeeding self-efficacy and duration of exclusive breastfeeding in pregnant women in Ahvaz, Iran. Int Sch Res Notices 2014;2014:510793.
Bonet M, Forcella E, Blondel B, Draper ES, Agostino R, Cuttini M, et al
. Approaches to supporting lactation and breastfeeding for very preterm infants in the NICU: A qualitative study in three European regions. BMJ Open 2015;5:e006973.
Pereira NM, Verma RJ, Kabra NS. Postnatal lactational counseling and neonatal weight pattern. Indian Pediatr 2015;52:579-82.
Weisband YL, Keim SA, Keder LM, Geraghty SR, Gallo MF. Early breast milk pumping intentions among postpartum women. Breastfeed Med 2017;12:28-32.
Phillips RM, Goldstein M, Hougland K, Nandyal R, Pizzica A, Santa-Donato A, et al
. Multidisciplinary guidelines for the care of late preterm infants. J Perinatol 2013;33 Suppl 2:S5-22.
Jefferies AL, Canadian Paediatric Society, Fetus and Newborn Committee. Going home: Facilitating discharge of the preterm infant. Paediatr Child Health 2014;19:31-42.
Gardner SL. Parent education prior to discharge of the late preterm or term newborn. Nurse Currents 2011;5:1-10.
Fowler AJ, Evans PW, Etchegaray JM, Ottenbacher A, Arnold C. Safe sleep practices and sudden infant death syndrome risk reduction: NICU and well-baby nursery graduates. Clin Pediatr (Phila) 2013;52:1044-53.
Craig JW, Glick C, Phillips R, Hall SL, Smith J, Browne J. Recommendations for involving the family in developmental care of the NICU baby. J Perinatol 2015;35 Suppl 1:S5-8.
Troutman B, Moran TE, Arndt S, Johnson RF, Chmielewski M. Development of parenting self-efficacy in mothers of infants with high negative emotionality. Infant Ment Health J 2012;33 (1):45-54.
Wolke D, Bilgin A, Samara M. Systematic review and meta-analysis: Fussing and crying durations and prevalence of colic in infants. J Pediatr 2017;185:55-610000.
Khurana S, Rao BK, Lewis LE, Bhat R, Purkayastha J, Kamath A, et al
. Development and validation of educational leaflet for caregivers of preterm infants. J Clin Diagn Res 2016;10:YC01-4.
Altimier L, Phillips R. The neonatal integrative developmental care model: Advanced clinical applications of the seven core measures for neuroprotective family-centered developmental care. Newborn Infant Nurs Rev 2016;16:230-44.
[Table 1], [Table 2], [Table 3]